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davidr_lowry
Member since 3-15-10
2 posts
03-15-10, 03:52 PM (EST)
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"FOH Phenotype"
 
   My son, now 18, was diagnosed with juvenile-onset bipolar disorder when he was 15. He has derived little benefit from the numerous pharmocolgic agents used to date and now refuses all treatment.

He appears to exhibit the vast majority (95%+) of the behavioral dimensions of FOH. Is there any pharmacologic treatment, or otherwise, that is working for these kids with this more severe form of the disorder?


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Daunnaadmin
Member since 11-20-02
353 posts
03-15-10, 05:47 PM (EST)
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1. "RE: FOH Phenotype"
In response to message #0
 
  

The Fear-of-Harm Phenotype information is descriptive, but I'm sorry to say it's not yet at a prescriptive stage:

"The expectation is that, when we identify the causative genes for bipolar disorder, we will be able to point to a network of signaling pathways in the brain that regulate specific behaviors associated with the condition. Once researchers are able to isolate the genes involved and understand their functions, the development of more targeted treatments becomes a real possibility. This has been a one of JBRF’s primary goals."
http://www.jbrf.org/juv_bipolar/fohphenotype.html

I'm so sorry to hear how bad things are going for your son and your family. Now that he is 18 and technically an adult, it's almost impossible to force him into treatment, unless you seek guardianship — and it takes a physician to say that an adult is not competent to make decisions about his treatment and other aspects of his life at this time.

If you think your son is likely to attract police attention (a distinct possibility, I'm afraid), consider going to them and notifying them of his medical condition and ask about their training for handling people like your son. If you have to call 911, ask them to send CIT-trained officers (CIT = Crisis Intervention Team). Also, go to your city/county prosecutor and ask them if they have mental health courts with diversion programs that give the offender a choice between probation with mandatory treatment and jail; these programs have good results. Find out how they decide who is a good candidate for Mental Health Court and how you can get the powers-that-be to send your son that way if/when the time comes.

I suggest you contact your local or state NAMI organization and find a support group and ask for help in exploring your options. Do it NOW, before things go more wrong.

Daunna Minnich
Moderator, JBRF Education Forum


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davidr_lowry
Member since 3-15-10
2 posts
03-23-10, 02:00 PM (EST)
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2. "RE: FOH Phenotype"
In response to message #1
 
   A recent JBRF newsletter stated the following regarding possible treatment modalities for FOH:

"We are already starting to move down the path of new treatment considerations based on this new knowledge. Some of the most direct treatments are likely to be non-pharmacological."

Are you able to discuss some of the non-pharmacological treatment options being considered at this point in time?


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Daunnaadmin
Member since 11-20-02
353 posts
03-23-10, 04:22 PM (EST)
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3. "RE: FOH Phenotype"
In response to message #2
 
  

David, I'm afraid I have no "inside" knowledge (or even "outside" knowledge!) about treatment, other that what anyone can read on the internet and my own kids' experiences. This forum was created as a place where parents and educators could discuss school-related issues that often cause difficulty for kids with bipolar disorder, and that's my area of specialization. I wish I could be more helpful.

Daunna Minnich
Moderator, JBRF Education Forum


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